Uncensored CBD information for parents of a special needs child The lack of alternative care information makes it nearly impossible for parents to actively participate in their sick child's care. When Osiris Stephen and Nina Simmons son was diagnosed with epilepsy they rejected the traditional pharmaceutical regiment and followed a holistic approach of proper diet, nutrition and CBD. They started the Luv N Cann podcast to share theirs and other parents stories to help parents' with sick children. Osiris talks to Dan Humiston about how the medical community, search engines and social media platforms censor information about alternative medicine and that podcasts are one of the few non-censored ways to share new ideas. Produced by PodCONX https://podconx.com/guests/nina-simmons https://podconx.com/guests/osiris-stephen https://podconx.com/podcasts/luv-n-cann
Uncensored CBD information for parents of a special needs child
The lack of alternative care information makes it nearly impossible for parents to actively participate in their sick child's care. When Osiris Stephen and Nina Simmons son was diagnosed with epilepsy they rejected the traditional pharmaceutical regiment and followed a holistic approach of proper diet, nutrition and CBD. They started the Luv N Cann podcast to share theirs and other parents stories to help parents' with sick children. Osiris talks to Dan Humiston about how the medical community, search engines and social media platforms censor information about alternative medicine and that podcasts are one of the few non-censored ways to share new ideas.
Produced by PodCONX
https://podconx.com/guests/nina-simmons
https://podconx.com/guests/osiris-stephen
https://podconx.com/podcasts/luv-n-cann
PC Luv N Cann
Dan Humiston and Osiris Stephen: [00:00:00] All right, everyone. Thanks for joining us. And welcome back. We have another great show for you today. My good friend, oh, Cyrus. Stephan is here to talk about his podcast. Love and cannabis. Oh, Cyrus. Welcome to the show. Hey, Dan, thank you for having me. How's it going? It's going great.
Finally, got you on the show. It's been a couple of months and I've been bugging you, but we finally got you here. I've known you for, it's been over five years, I think, but I re I really got to know you when I moved to New Jersey and started working out of the CWCB office. And it was during that time that I learned about your son Aiden's illness and your family's journey to find a cure.
Let's start here. Can you give me. The short version of Aiden's story. All right. So no, thanks again. Basically the short end of the story is. He was diagnosed withgeneralized epilepsy when he was two and a half years old. During that time, before we can even get knee deep into, different types of medication, we decided to use cannabis oil once I was made aware of it and how it works and how it helps with [00:01:00] epilepsy, we jumped on board immediately.
So, it was between that and two medications. We're okay with that. But when limiting the other medications and just focusing on CBD oil and his diet, the troubles that you guys ran into just trying to get it okay to give your child CBD? Is it was just so frustrating. I mean, I heard it hundreds of times, but every time I hear it, I'm just like, so frustrated, listening to all that hurdles that you had to go through.
And I think that's the, one of the things that I think you highlight in your show is you go back and you see when you walk everybody through . Some of the challenges that you had is between you and Nina. I mean, it was just, must've been horrific. It, it kept us up a lot, just trying to help you, son, you didn't even realize that we had to go through so many hurdles if it's not the educational system, if it's not, the political system is not, your doctors, who don't understand it.
And it's just that they're hung up on the stigma and didn't realize that it's a plant is helping. Why are we stopping this? And it's a child's library talking about, [00:02:00] I know it's so frustrating. , and what's really frustrating is that there's no information. It's like all the cannabis information , seems to be censored or it's not available.
And that makes it even harder. I think that was one of the blessings of your show is that you brought a lot of this information to other families who were struggling with the same price. Yeah. And hearing their stories. It really pushed us to keep trying to get the message out.
The more they push back, the more we push forward. , especially with doctors, when they realize how much we knew and understood, they were like, okay, so we, I guess we have to work with you is either we work with three or we. And it was really that that option was that partnership that we had to establish.
Like we know what we're talking about and we've been through this, so let's get on the ball and let's make this happen. Even politicians got on board with us, they were like, okay, so you guys know what you're talking. So you're not someone just trying to give your child, marijuana it's just to give it, it's like, no, you guys really know exactly.
And what's fun is when you have other guests [00:03:00] on other parents that went through similar, going through similar situations and they tell their story , it's crazy. How will they parallel your story? What you didn't know, even know that the two of you existed, you're going down the same journey and you didn't even know of each other.
And there's so many of those stories. Yeah. And it touched us too, because we related so much, we were like, we're understand the pain. We understand the struggles that you're going through. And it's just that we want to keep motivating them as much as we're motivated, cause we lean on each other as it's like, we created this bond is family bond now.
Yeah. You know, I didn't even know it's a sad topic. , but the thing that I hear over and over. W what people like about your show is that , even though it's an intense topic, you and Nina really keep it light and fun. And the other thing that everybody comments on is how you're willing to really peel back the curtain and just be super person.
I mean, some of the stuff that you guys talk about between the relationship and everything [00:04:00] and dealing with it, and you did challenges to your marriage. Sometimes I'm blushing listening to some of the stuff that you're talking about. Do you ever worry that you're sharing too much information?
There was a moment about it. I said, Hey, Nina. I really want to like open the curtains, like let everybody in. And she was like, eh, but it's like, if it's going to help a family. And she's like, yeah, you're right. Let's be honest and be authentic about this. This is real life.
Let's talk about the things that everyone is not willing to talk about are too afraid or shy away from, let's talk about the fact that we don't get intimate sometimes because of the stress it's real life, or we've talked about it last time we even slept together. You know, Although this real reality, because when you feel so stressed, it's like there's times where you just don't want to even talk to each other.
And this is one of those situations. Yeah. And families need to hear that because that's real, it's real. But it takes a lot of cuts, especially for you. Cause you're sometimes Nina is like, what did you just say? I think that's so funny. We just feed off of each other.
Cause you know, we gotta have [00:05:00] fun with it cause there's room to be sad, but this, that also be rude to laugh at us. Yeah. Yeah. Well, that's what makes it fun. And I think that's how you get through a trying topic is by making light of it and, Aiden's making such great progress.
The, the thing I like about podcasts is that unlike social media, there's no censorship. So we're allowed to talk about controversial topics. For instance, treating children with CBD right now is still considered controversial in some places. So you brought along a clip from a recent show. Vaccine side effects, which right now is definitely a third rail topic.
Tell us what we're brought to here. What you're about to hear. It is a young lady that my wife had met on social media. Her name is Michelle Carroll and she shared her story of how she's struggled with her son who was vaccinated. She was not a anti-vaxxer or a Provax. So she was just following like any parent we know when they told to basically follow the guidelines around that.
And their child health as well as to participate in, [00:06:00] schools, daycare and things of that nature. But within the first five months of the child's health, the child started going downhill. And then , she continued vaccinating even after the fact. And it wasn't until years later that she realized what she was doing.
So that's what you're going to hear. Like the crazy thing, things like I was asking them, like, is he having a reaction to the vaccine? And they would document in his records. Mom seems to think that seizures and reactions and sickness is from vaccine, but we're assuring her that she needs to continue. Ah, that's how they cover their behinds.
That's one of the things that gets me upset is the way they dismissed it. Yeah. And as a mother, better than they do exactly. You guys know it's like when you watch your perfectly healthy child, just like do a complete 180 and regrets, you know that wow.That's intense. It was, it was just the it, and it's like, I understood, I [00:07:00] know where that came from and it's scary.
Oh, my gosh. It is, and this is a two part episode. So the first part played on Friday, in the first part, we mostly set up what she went through. And the second part is how things started to resolve. I'm anxious to hear the second half of the show, cause I there's this Friday, but man, like I said, you're able to talk about really, really controversial things that parents need to hear because she certainly felt alone in that.
Yeah. And this many like herself and other parents, and it's just like so sad that, I think what happens is the trust that you put into institutions, hoping that, they're going to do the right thing by you and then turn around and just like, you don't know what you're talking about.
W we'll take care of everything. And then it comes out as like, you're the ones that's left holding the bag really in the end. And that's your child's health and wellbeing. I know thank God we have a show like yours that can shed some light on this. And she gives some families, some ammunition when they go in to speak to somebody before we wrap [00:08:00] let's give some advice to aspiring podcasters.
You guys aren't full-time pod-casters you have full-time jobs. You live in New York city. You're raising a special needs child. You don't have a lot of time. What, advice would you give someone who wants to start at podcasts, but doesn't have a lot of it. Find the commitment to do it. If that's something you really want to do, you find the time and that's one of the things that we did my wife and I, we sat down and said, okay, what's the best day.
What's the best time. And once we narrowed that and it's like, okay, we have a son, what time does he need to be in bed? So it was all those things, but we were determined to do it and we wanted to do it. So I think that's what propelled us to be able to continue doing. Normal podcasts don't last past six weeks.
From my understanding and the fact that we're going almost on our second year, it's amazing. Yeah,it's a Testament to your commitment to spreading the word and helping other families, which is, it says a lot about you and Nina and, and, thank goodness we have Aiden that can get, yeah.
It'd be our inspiration. Well, you can check out a new app [00:09:00] sort of loving can every Friday on a whole major podcast sites, including pod connects, you can also apply to be a guest on podcast. Well Syrah. Thanks for being on the show today. Hey, thank you Dan, for having me, it's been always a pleasure talking to you.